My Miracle Girl

This girl is rocking and rolling. She is making new friends, growing in many ways and doing so many new things.

We got this awesome stander right at Christmas time. She loves loves being upright and moving. This is the perfect piece of equipment for her.

It took a good bit of begging and pleading before the insurance company and the therapist agreed to fund it for us. But we got it accomplished. She rolls all around the house in this thing!

This past summer, I started praying for an ipad. I really felt like ti would be beneficial to Nesiah. I prayed and sought out different options. There was really no funding available anywhere. A $500 ipad was not in the budget.. Long story short, a friend from the past and her husband blessed us with this amazing ipad. free. completely free gift. It has been life changing for Nesiah.
It has improved her tracking and vision abilities. She loves to listen to music on it too. It also has helped her interact with people around her, because it is HER ipad, the kids have to play with it by her and with her. So it is a social interaction tool.

Nesiah loves worship music. She is learning to communicate. She has started demanding that I let her stand with me during worship time at church.
She lets us know when she is hungry, sad or wants a cuddle.  She loves to be in the kitchen with me when I am cooking etc.


For this season of life, God has blessed me with several great respite providers AND finally after several years of fighting,I have been approved for respite funding.  A young woman from our church comes once a week for 4 hrs, another lady comes when I need extra help on some days, and yet another friend loves to have Nesiah over to their house. She loves each of these caregivers and they are all people who truly enjoy her. I am able to attend youth events, church events and take my big kids out to do things I otherwise would not be able to.

Last but not least, I was just invited to take my daughters to a dance class on Sunday evenings. Not just any dance class.. but a dance class where the instructor is a dance THERAPIST! I am so excited to see how this will work for Nesiah. She loves music and I am sure she will love to dance!

The biggest health concern she currently has are her seizures. They seem to be hormone related, and cycle monthly. They are not fun for her and scary for us. We pray that she would soon outgrow them.

I love how God has provided each of the things Nesiah needs at just the right time! I love how He cares for every little detail of her life.