(I wrote this right after our hospitalization in July and never got to post it until now)
Last
year on July 13 Bubbie had his worst ever asthma attack. It came on
suddenly and got worse FAST. I was canning tomatoes. I noticed his
breathing was not right, as I carried him in my backpack carrier. I
medicated him then continued canning. I made effort to stop every 3
hours and give his meds. He kept getting worse and fast. I took him
to the Dr while the last jars were still boiling. The big kids all
went to a neighbor. The dr called the ambulance. The hospital
admistered meds and oxygen. We were admitted for 12 hours. He came
home and we were unable to go outside for the entire months of July
and August.
Two weeks ago, he started suddenly with a very
high fever, right after I left him in the church nursery for the
first time in over a year!
I worked on treating the fever. I gave
his meds, everything I had. He did not improve and we added
respiratory issues to the mix. He started wheezing Tuesday... He and
I were up every 2 hours Tuesday and Wednesday night. Thursday he had
a fever of 104.5 I called the ped, who advised me to start steroids
and bring him in the next morning. By morning his fever was gone. But
I took him in anyway. He was getting round the clock albuterol and
atrovent. He was also on steroids by this point. His temp was normal
and his lungs clear at the pediatricians.
He was not himself
all week, he wanted to be held. He actually sat still and stopped
talking nonstop.
Saturday he seemed better, so I left him
with a trusted sitter who knows how to handle his allergies. When we
got home late that night, I put him to bed. I took a bath. But I had
a bad gut feeling.
I checked his lungs. He sounded AWFUL. His
breathing was shallow and his oxygen low, even after back to back
treatments.
My normal ER babysitter was out of town. I
managed to get another neighbor girl to come over to stay with the
big kids and off to the local ER we went.
I hate this ER.
After our last visit, I said I would never go again. But my other
option is 30 minutes away, in the city and it was July 4. So I
decided to go to the local one. Big MISTAKE!
The checked his
oxygen level, it was a lil low and he had a minor wheeze. They gave
him albuterol. They did a chest xray and said that he possibly had
pneumonia in his left lung. Now every other time, his right lung was
the first to show any sign of infection!
They gave him an antibiotic. The
problem we encounter with this is, his food intolerance. Steroids and
antibiotics can not be given in syrup because they create a monster.
So we had to find a tablet/capsule with the right ingredients. Yes,I
will insist on seeing ingredient lists and helping with choosing his
meds! I have to live with the child!
So they gave the meds
and discharged us. It is now 2 am, I have a toddler who has not slept
since 2 pm. I am exhausted from being up and stressing all week. But
I ask the nurse to please check his oxygen level since it WAS NEVER
CHECKED AFTER GIVING TREATMENT!
In the Dr office or any
other ER, an oxygen level of 89 requires oxygen or an ambulance. In
this ER an oxygen level and wheezing means you get send home!!! I was
furious. I debated insisting they treat him again. But I had that gut
feeling that it was time to move on. I left.
I took Bubbie
home. I put him to bed. I told my babysitter that there was very
good possibility I would call her again. I listened to him. He
sounded worse. I gave a back to back dose of meds and a double dose
of prayers. I slept for 3 hours.
When I woke around 6, I knew
what I had to do. It was time to head to the Big City, an hour away,
where all his specialists were. I called all my neighbors. No one
answered. They were all out of town. I finally called the girl that
had stayed with them the night before. I also texted my kid's
favorite sitter.
While I waited for a response, I packed a
bag. I planned for 2 kids to go with me and 3 to stay with the
sitter. I had the kids do quick chores. I gave meds and watched
carefully, praying hard.
Finally sitter #1 arrived and just
as I was leaving sitter #2 texted back. Miss N lives 30 minutes from
us, but she would come ASAP. I quickly made the decision to leave all
the big kids, except for David with her. They love her and she loves
them.
David, Bubbie and I drove down to the Children's
hospital. It was a very very long drive for a tired, worried momma.
We arrived and I had trouble finding ER parking. We finally
get inside and they take one look at Bubbie, whisk us into a room and
start checking him out. I could finally breath.
This
children's hospital is huge and one of the best on the East Coast.
They went over everything we had dealt with. They gave him a
huge, mega hour long albuterol treatment. He screamed and fought me
the ENTIRE hour. They told me that if I could not get him to take the
meds they would wrap him in a sheet and force him to take it. My
weary mother heart could not fathom allowing them to do this to my
sweet boy. I prayed HARD and held him snugly in my arms until my arms
ached and my legs were bruised from his kicking. Yes, security walked
over to check on us.
They did another xray. They determined
that he did not have pneumonia. He was simply have a major asthma
flare up.
Right after his hour long albuterol treatment and
his xray, his oxygen level dropped to 90. They immediately put him
on oxygen. Thankfully he did not fight that.
They wanted him
to either have an IV med to make the albuterol work better or another
hour long albuterol treatment. I prayed and prayed... His oxygen
level suddenly went back up to where it was supposed to be. Not
perfect but def improved. The nurses could not believe it.
They
did not have to do another drastic treatment. God def was looking out
for him. We were admitted to the hospital for 24 hours. We shared a
room with a teenage muslim boy. Thankfully Bubbie was exhausted and
finally breathing better so he slept much better then I ever
anticipated. Meanwhile David (11) and I had to share a tiny cot of a
bed.
Bubbie drastically improved in 24 hours but had been running
and playing, so was red and sweaty when we encountered the Dr on
their rounds, so they required him to stay all day to be monitored.
They released us on monday evening, a little over 24 hours after
admitting him.
We came home late Monday evening. I got to
drive the Turnpike and The expressway during rush hour traffic. But
we were so thankful to be going home that we didn't mind!
Meanwhile
back home. Miss N had taken over my life. There are not many people
that can do what I do. But Miss N comes in and does a great job. She
took 4 of my kids including Nesiah, to her house in my big 15
passenger van. She and her family made it a fun day for my kids. They
helped my kids to relax and not worry about their baby brother. They
made fun memories. Then she brought the kids home and made sure all
the animals were cared for. She slept over, which allowed my kids to
sleep in their own beds. She made breakfast, helped with chores, got
Nesiah off for her first day of summer school. The girl amazes me
every time!
The kids spend the day, on Monday with
neighbor friends. I am so thankful for all the people who wrap around
us.
It has been incredibly hard to see how much progress we
have lost in the last week. The potty training went down the drain.
Bubbi is back on his bottle and has even less foods he tolerates. We
are back to being trapped in our home because of his allergies, the
air outside!
We do have our happy, active, never stops talking
or moving toddler back. He still needs frequent treatments and max
meds. He is back to getting 90% of his nutrition from his infant
formula.
We trust that God knows what he is doing.
